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Financement de l’UE (3 903 826 €) : Qualité, utilité et maturité mesurées ; Élaboration d’une étiquette de qualité et d’utilité des données pour HealthData@EU Hor01/01/2024 Programme de recherche et d'innovation de l'UE « Horizon »

Texte

Qualité, utilité et maturité mesurées ; Élaboration d’une étiquette de qualité et d’utilité des données pour HealthData@EU

Context: Data users (i.e., researchers, innovators, regulation agencies and policy-makers) need high-quality data. In HealthData@EU, data holders are expected to make their datasets available for secondary use, providing a notion of their quality and utility and the maturity of their data quality procedures. In article 56 in the HealthData@EU proposed regulation, this notion would take the form of a label. Goal: Overall, QUANTUM aims at developing and implementing a label mechanism that could be ideally adopted in the future HealthData@EU. Methods: QUANTUM builds on 5 technical work packages (WP). WP1 conceptualises and provides technical specifications for a data quality, utility, and maturity label. WP2 designs and tests, at small-scale, the label. WP3 implements the labelling mechanism in a number of data holders. WP4 engages the data quality users’ community; and, WP5 outreaches other interested parties, including other initiatives building HealthData@EU. Expected results: a) A common concept of datasets Quality and Utility and Data holders’ Maturity; b) Technical specifications for the label (Deliverable D1.1. and D1.2); c) A conformance checking tool that yields the label (D2.1); d) An implementation report of the label mechanism (D3.1); e) Recommendations for a large-scale implementation of the QUANTUM label mechanism (D3.2); and, f) The QUANTUM Exchange Platform and Academy (D4.2 and D4.3) as instruments for capacity building. Consortium: For this purpose, 27 beneficiaries, 5 affiliated entities and 3 associated partners. The composition of the Consortium seeks to reflect the different roles and institutions in the governance of the HealthData@EU; virtually consider all types of data and science of interest; and gather the expertise of previous outstanding projects in the domain


Haute Autorite de Sante ?
Assistance Publique Hopitaux de Paris 56 500 €
Biobanks AND Biomolecular Resources Research Infrastructure Consortium (Bbmri-Eric) 170 700 €
Bundesinstitut FUR Arzneimittel UND Medizinprodukte 31 656 €
Centre Hospitalier Universitaire de Toulouse 0,00 €
Cessda Eric 88 375 €
CHU Hopitaux de Bordeaux 0,00 €
Digitaleurope Aisbl* 224 450 €
Direktorat FOR E-Helse 0,00 €
Ecrin European Clinical Research Infrastructure Network 34 625 €
Erasmus Universitair Medisch Centrum Rotterdam 57 125 €
Ethniko Kentro Koinonikon Erevnon 0,00 €
European Digital Health Academy gGmbH 42 750 €
European University Hospital Alliance 115 213 €
Folkehelseinstituttet 0,00 €
Gesundheit Osterreich GmbH 160 044 €
Health Information and Quality Authority 59 625 €
Helsedirektoratet 51 589 €
Hospices Civils de Lyon 0,00 €
Hrvatski Zavod ZA Javno Zdravstvo 19 937,50 €
HUS-Yhtyma 31 344 €
Instituto Aragones de Ciencias de La Salud 534 673 €
Istituto Superiore Di Sanita 39 313 €
Koninklijke Nederlandse Akademie Van Wetenschappen - Knaw 0,00 €
Nacionalni Institut ZA Javno Zdravje 31 813 €
Plateforme des Donnees de Sante 358 763 €
Sciensano 477 366 €
SPMS - Servicos Partilhados do Ministerio da Saude ΕΠΕ 77 125 €
Stichting Health-RI 276 950 €
Terveyden JA Hyvinvoinnin Laitos 200 375 €
THE European Institute for Innovation Through Health Data 345 491 €
Universidade do Porto 32 103 €
Universita Cattolica Del Sacro Cuore 204 988 €
Universitat Politecnica de Valencia 134 075 €
VIB VZW 46 861 €

https://cordis.europa.eu/project/id/101137057

Cette annonce se réfère à une date antérieure et ne reflète pas nécessairement l’état actuel. L’état actuel est présenté à la page suivante : HAS, Saint Denis LA Plaine Cedex.